Friday, October 28, 2011

This past March

This past march, I was diagnosed with small cell lung carsenoma extended, or oat cell cancer. I was also diagnosed with a rare disease called lambert-eaton myastenic syndrome. And treatment for both are as painful as you might expect. One was the worst pain you could imagine, and I've had babies! Right after diagnosis, in March, I was told had days to live. Did i want to go home and die there, or be moved to palliative care where they will make me comfortable until I die? I didn't like either of those choices, so I chose door number 3. My daughter and sister did some research and found Baylor Cancer treatment center downtown was the best there was. My dr is Dr Konduri. He has never, not one time said to me that I will die. I know this cancer is terminal, but we don't talk about that because I dont want to. Dr konduri keeps an eye on every aspect of my treatment. He goes over my medicine, wants to know who prescribed it. Do I have their phone number? He will call them, right then, and tell them to take me off of it, or change it. So now I've gone from days to live to the results of my scan from Wednesday. Today I was told my scan was awesome. I have one lymph node that has enlarged, but due to my cough, he thinks it's an infection. He is going to rescan in 2 weeks to be sure it's an infection, but I feel well enough, I believe that is all it is. The other good news is the wound specialist has cleared me for brain radiation. I guess that's good news, but it needs to be done. So in march, I was given days to live. Now, thanks to the God I serve, 8 months later I'm still here. YEAH! Now I just have to deal with lambert-eaton. My legs just don't work well at all. I do the old woman shuffle. If this continues, I will be bed ridden very soon. I go to Houston soon, Nov 1, to be re-examined. If all goes well, I will be given a drug that they say will make my legs normal. Good lord, what a miracle! It would suck to be given more time here on earth, only to have to spend it in bed. So today, I am so grateful to God for all he has done to keep me alive, feeling fairly good, and getting me on the right track for lambert eaton. I am blessed. I am grateful, I am happy, and I am enjoying my life. To my brothers, beware. I am going to be around to bug you for awhile. And to my sister, i already know she is on my side. Thank you Lord for keeping me alive this long. Giving me another grandbaby. I love having 11 of them rascals. just thank you Lord. Y'all keep praying for me. Please. Keep the faith! Becky

Tuesday, October 18, 2011

Sorry, I hit a wrong button. I have to realize it's not all about me, but my ego is wounded ever so slightly. To my step-sisters on my Fathers side, thank you all for meeting with me early. It meant the world to see you all that extra time when we met early. Rachel and jenny, it was awesome for y'all to be there. Now you know why we are wounded souls. But God lifted us up, saved us, and given us the courage to give up most character defects. I am so blessed. I am loved by many who are not afraid to show it. Keep praying. I am still praying for strength and healing. I fell out of bed last night. After I got past my wounded ego, then I had to muster the strength to get up. It was hard. Just keep praying...Becky

1 Peter

In reading my Bible tonight, I read 1 Peter 1:6-7. " So be truly glad! There is wonderful joy ahead,even though it is necessary for you to endure many trials for awhile. These trials are only to test your faith, to show that it is strong and pure. It is being tested as fire tests and purifies gold. So if your faith remains strong after after being tried by fiery trials, it will bring you much praise and glory and honor on the day when Jesus Christ is revealed to the whole world.". What awesome scripture!! I just wish, hope and pray I am passing all those trials. As some of you know, I went to Tulsa weekend before last. I went to give my testimony for what I believe will be my last testimony. I had to be helped up the maybe 4 steps by my son. My legs just wouldn't work well on their own. I gave my testimony, and had to be helped down. I have to ask someone, (maybe God), after being bald, can we cut it out with the humiliation! After being bald, I discovered I'm vain. I never would have known that until my head was as slick as a baby's rear end. The other thing I have always known is I HATE asking for help. I just hate it. My body has deteriorated to the point I need help for most everything. The other thing I believe, is God is preparing me for my death. I so pray I am wrong because I'm not done talking about Him. But I believe He is preparing me just the same. I feel if I live 6 more months, it will be a miracle. Now don't everybody go jumping on my for my "lack of faith". It is not that. I have faith in God to know He will take me when he's ready. God also got it thru my thick skull when my husband died, that to God, death is not a punishment, but a reward. It only feels like a punishment for those left. I am also not asking you to quit praying for healing. I would so love to be healed! I would love lots more holidays with my kids and grandkids. I so wish I could have all my kids and grandkids here for what I believe is my last holidays. But that is impossible. 3/4 of my family live out of state. The other thing I have to remember is my kiddos are busy, have lives of their own, and already have plans. I just always believe it's all about me.

Wednesday, September 28, 2011

Brystol

I have a little granddaughter that is 2 years old. Her name is Brystol. One of the things I love about Brystol is she is always smiling. Quite unusual for a 2 year old. She just seems to find the world, and all it's creatures funny. She has a big cheesy smile, and will have you laughing at her antics in nothing flat. The only things in life she seems to need is her sippy cup and her yo gabba gabba dolls. If you don't know what those are, don't feel bad. I didn't know until last year. She is surrounded by people that love and care about her, and she knows that. She has her Bub, who she thinks hung the moon. And there is nothing he would not do for her. Then she has her big sister, Ga-Ga, who helps her with things, or takes things away she shouldn't have. She has Elleigh, her little sister, that she just knows mama and daddy brought home so she would have her own baby. But no matter what happens, she just smiles. I've learned alot from this little 2 year old. Life really isn't so complicated, if you are a Christian. Sure, I am having some health issues, ok, major health issues. My mama used to always tell me " you have the same drawers on to get glad in". So I may as well smile and go on. I am surrounded by people that love me, whether it's family, friends, church family, co workers, etc. I am loved by God, the Creator of the universe. Did you catch that? I am so special, that I am loved by the creator of the universe! How awesome is that? I am surrounded, like Brystol, with people that do those things for me, that I am now unable to do myself. Brystol has a funny sense of humor, and sees the world thru her own eyes. Not mine. Not yours. She is like her mama in that she is going to do things her own way, and she somehow knows it will all come out ok. She loves to get hugs, and loves to give hugs. Frankly, I think she is quite amazing, and when I grow up, I want to see the world thru her eyes. Tho maybe I do to some degree. I find humor in the world, and the people around me. An example is when the neurologist yesterday kept talking about 2 years, bla, bla, bla, 2 years. Finally, I asked him what he was talking about with 2 years. He said,"has no one ever told you your life expectancy?". I told him no they had not because I never asked, and frankly didn't want to know. Oops! On the way home, I kept thinking about his 2 year life expectancy. 2 years from when? When did the 2 years begin? From diagnosis? That would be march. But what if I had gone to the dr in Jan, would I just keel over dead in Jan 2013? What if I still hadn't gone to the dr yet, would my time not have started yet? What if I cross the international date line? Do I get another day, or die a day sooner? Do I wait until someone says "ready, set, go!". This 2 year thing is so confusing, I think I just won't die. I think I'll just stick it out until the rapture then we can all go together. I never liked taking trips by myself anyway. Life is funny. Brystol baby, thank you for reminding Nanny how funny life can be. And honey, like you, I will just keep smiling. Keep the faith, Becky

Sunday, September 25, 2011

What a wonderful weekend. I spent it at a church camp in beautiful east Texas. My cousin, Charlene, came to help me. My problems are that my legs don't work so good. I cannot tell you how many trips she made to the room, meeting hall, or getting something in the cafeteria, just because I wasn't strong enough to do it on my own. I HATED asking her for help. I wanted this to be a time of fun and relaxation for her as well, not there to take care of me. I thought about this all the way home. How she sacrificed herself for me, and for no other reason but love. I also began to realize I hate asking God, my Father and Creator for help. I always think he has more important things to do. (like world peace and seeing to it us women wear Christian panties). If you were at camp this week, you get this last statement. I know God cares about my cancer, and I can pray for that, but to ask him to give me strength to walk, seems like I'm troubling him too much. Do you ever do that? Now, as a parent, I want to be involved in all aspects of my children's lives. ( I will not interfere, but I care enough to know what is happening in their lives. Wouldn't God be that way with me? And the only difference is, I want him to interfere. I want him to take control and make me feel good again. Today I realized I am like the cowardly lion on the wizard of oz. I know I have to see the wizard, and I know when I get there, I will be welcome, but I am scared of the journey to get me there. Whether that is healing or death, either way is painful. Haven't I had enough pain in my life? Course, the deciples probably wondered the same thing before they were put to death. The camp was relaxing, shed lots of tears, laughed alot, made new friends, and spend much time with God ( and Charlene). I am anxious to go back next year. I will make my prayer to be stronger before next ladies retreat. Andrea, it was so nice to meet you and put a face to your name. I am so grateful to God, that he has let me live this long, allowed me to see my 11th grandchild, will help me thru one more testimony at family church, and I just pray he gives me all the right words to say. So tonight, as I pray, I won't just pray for healing. I will pray for peace, strength, rest, no pain, my ear to heal, and my life to be a good one. Maybe it is never too much to ask God. I only thought so, and I have been known to be wrong a time or two. Keep the faith, Becky

Sunday, September 11, 2011

Great weekend

What a fun weekend. Saturday, our church was having a "love run". The money earned went to the benevolence fund. I wanted to walk it, but there way no way my dr would let me. With the progression of the Eaton-Lambert disease, it was probably a good thing. So I rode with one of the men in his handy dandy golf cart. So much fun. After the run, I went with Mandi, James, and kiddos in their busvan to eat lunch and do some shopping. I sat on the same seat as Brystol and Elleigh. Elleigh thought I was funny, and I thought Brystol was funny. It is amazing how many people and stuff can be packed in one vehicle. Got up and went to church this morning. Cheryl and I had gotten our pastor and youth pastor a couple of thank you gifts for all they have done for us. After we presented them with our gifts, pastor preached an awesome message, as always. Then after church, I signed up me and my cousin, Charlene, for a Womens retreat. I haven't been in years, and Charlene has never been. It is in her neck of the woods, so it should be fun. Just a weekend with God, each other, and 2 other people God puts us with. I am blessed. I am blessed with good friends, an awesome church, a family that loves me, and still finding ways to serve God. Most of all, I am being blessed with hair!! Now let's hope the radiation doesn't knock it back out. Becky

Friday, September 9, 2011

My Bros and Sis

For those of you that haven't known me for many years, you would have no way to know that my sister is a 16 year cancer survivor. She was the only one of us that never smoked and ended up with throat cancer. The drs at MD Anderson said she was terminal. They couldn't save her life, but they could prolong it. Well, at this point, it's been prolonged 16 years. I have had a rough week. I have been told things from drs I interpreted as terrible, and I took them at their word. I mean, come on, how many miracles does one family get? And she got it first. Based on my extreme fatigue, and just overall feeling really bad, not even energy to do my laundry, I have felt my life was getting shorter and shorter. I have stated this to my brothers last week, and to my sister this week. Well, me saying this didn't set too well with the sibs. Now it's truly how I felt because I seem to be getting worse instead of better. Fatigue levers are thru the roof, I just don't feel good. I see iy as a down hill slide. After my sister did her own rear chewing, she explained it was because it takes alot to bounce back from chemo. Alot. I had no idea it would take this long. She reminded me that after radiation, I would feel like I was dying, but I won't be. Wish they wrote a book on what to expect. But then I guess all people are different. So tonight, I am grateful for my rear chewing bros and sis. I am thankful God put them in my life so I won't give up. I am thankful they remind me what I'm fighting for, even if I do call them ugly names because they are right. I love you, Ruby, Mike, William, and Brenda. This is not a journey I am on alone, I just forget that sometimes. Thank you for being there! Becky